CONNECTIONS
con·nec·tion [ kə nékshən ]
- the joining together of two or more people, things, or parts
- a linking association between people, things, or events
OUR LINK = Hemimegalencephaly
- the joining together of two or more people, things, or parts
- a linking association between people, things, or events
OUR LINK = Hemimegalencephaly
Seeing the faces of children (and adults) with HME and their families is possibly one of the most therapeutic and hope-providing experiences. It is through these pictures, videos and family blogs that we "see" how families like ours have not merely gone on with life, but how they have grown and prospered - with love, hope, determination, passion, faith and sometimes brute strength - regardless of this diagnosis and all it brings with it.
If your child has been recently diagnosed, please take a moment and look through the pictures and videos (as appropriate), as well as any personal blogs or websites of some of our families. Chances are, they will provide you with hope and comfort and a sense of support that is beyond what you could have imagined. That is our sincere wish.
For those of us that are no longer new to this journey, these pictures and videos are a way to remind us just how far our children have come, how strong they are, and how blessed we are to be a "family" to each other. And the blogs and websites...they allow us to continue the journey with each others children and give us the opportunity to celebrate each continued victory and milestone met along this journey.
HOPE dwells within these children, adults and their families...all you have to do is look.
If your child has been recently diagnosed, please take a moment and look through the pictures and videos (as appropriate), as well as any personal blogs or websites of some of our families. Chances are, they will provide you with hope and comfort and a sense of support that is beyond what you could have imagined. That is our sincere wish.
For those of us that are no longer new to this journey, these pictures and videos are a way to remind us just how far our children have come, how strong they are, and how blessed we are to be a "family" to each other. And the blogs and websites...they allow us to continue the journey with each others children and give us the opportunity to celebrate each continued victory and milestone met along this journey.
HOPE dwells within these children, adults and their families...all you have to do is look.